Syndromes

http://www.rarediseases.org/ National Organization for Rare Disorders, a very useful site.
http://www.cafamily.org.uk/home.html CAF directory on rare disorders, used by many professionals.
http://www.hhmi.org/GeneticTrail/ Site dealing with genetic disorders
http://home.wanadoo.nl/euro-ataxia/ Deals with hereditary ataxias
deafblindscotland.org.uk/info/usher/ Usher Syndrome
http://www.williams-syndrome.org/ Williams Syndrome
pwsa-uk.demon.co.uk/index Prader-Willi Syndrome
paston.co.uk/users/maygurney/dsa.html Support group for parents with young Downs Syndrome children
http://lena.jax.org/alstrom/ Alstrom Syndrome
http://www.fraxa.org/ Fragile X
http://www.findinfo.com/tourettes.htm Tourette's Syndrome
http://www.nfa.zetnet.co.uk/ Neurofibromatosis
www.specialyoga.com Yoga for children with Down's Syndrome
http://www.tourettesyndrome.co.uk/ A really wonderful site run by a family dealing with Touretts Syndrome

If you find the information you are looking for but are confused as to how this may be implemented in your child's classroom we offer advice via e-mail seek advice.

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